Category Archives: Dak Gustal

Incredible Cost of Giving Care

There is a cost to caring for our parents and loved ones that goes beyond the financial. Our schedules are eaten up by hiring caregivers, going to doctor appointments, answering weepy phone calls, defending our need for time away. Instead of complaining outright, we complain in public restrooms to strangers or at lunch to our best friend, while woofing down a sandwich and surfing the net for assisted living options. We yell at our kids, forgo the workout at the gym, eat out of the vending machine, and ignore those activities that gave us so much joy. They’re our parents, after all! We must take care of them.

Why do we do it? Why do we put ourselves in the role of giving care to our parents or other family? Reach beyond the usual response of, “If I don’t do it, who will?”

In my recent radio show, author Katy Butler shares her caregiving story. Her touching and trying account of looking after both parents will cause you to think. As will Dak’s blog Dying Gone Haywire from 2013.

I understand the pull of wanting to do what we “should,” and needing to set boundaries. I’m here to help and want to hear from you.

I See that you’re suffering; let me provide relief

“When all is said and done, killing my mother came easily. Dementia, as it descends, has a way of revealing the core of the person affected by it. My mother’s core was rotten like the brackish water at the bottom of the weeks-old vase of flowers. She had been beautiful when my father met her and still capable of love when I became their late-in-life child, but by the time she gazed up at me that day, none of this mattered.”

The first paragraph in Alice Sebold’s novel, The Almost Moon, hit me in the gut. A frustrated daughter relieves her mother’s suffering while also setting herself free from the pressures of caring for someone who no longer recognized her as her daughter.

But this is a novel. This is not real life. As soon as I finished the book, I sighed and silently asked the unthinkable, “When will we see a headline about a daughter ‘relieving’ her mother of suffering?”

And then this article appeared. Is that what this is about? When we see a mother-daughter murder-suicide in the news, alarm bells ring. I discussed this with Dak and these are our thoughts in his words:

 

It’s just one case, right? It’s not like this is happening all over the place. This is not an epidemic. It’s just a weird thing is what it is. It’s an isolated incident, that’s all.

And yet, there is a whole lot of mystery to this that opens out into many possible worlds. This story offers very little detail. The authors won’t speculate. This one will.

I can imagine reasons for this happening from many angles.

The mother had a dread disease and no one would listen to her except the daughter who decided to act to alleviate her mother’s pain and then couldn’t live with herself.

The tyrannical mother finally became weak enough for the abused daughter to overpower and kill. Then killed herself.

Sorrow at loss of being useful.
Sorrow for being a burden.
Without hope.
Interior demons hide in the dark and they look like competence to everyone else.
Despair. So many reasons for despair.
Why did she choose a gun?
A belief that there is a better afterlife.
The weight of living is too heavy.
Too much of a burden on the ones you love.
Too much of a burden on the country you love.
Loss of community to death, to convenience, to entertainment and long distance.

What are the solutions here? How do we feel when we read a story like this? I feel my mind reach out to try to comprehend what happened, but why? Do I think I might become a woman whose mother is still alive and have to face this situation myself? No. But I can imagine how it could have felt and I think it would have felt pretty bad. No matter what the story behind the people is, at least one of them was suffering and had no relief in life. We can moralize about her choice, but that doesn’t seem like a solution to me. I feel that it’s wrong to kill, but happy people have no reason to kill. A satisfied society is a safe society.

So these two…hey one of them lived to be 93. That’s some persisting. I don’t think people live to be 93 without figuring a few things out and my feeling is that she had a good way of coping with stress, one that worked. Her daughter made it to 60 and that’s saying a lot as well. (I know we’re not supposed to be impressed with how long we live now compared to the entirety of our previous existence, but I’ve been watching “Cosmos.”)

She was suffering and we were in no position to offer relief. I think the fear is that one day we will be suffering in such a way that we need help for relief and it doesn’t come, or it’s slow to come. What kind of help?

We seem divided from our heritage. We have social media instead of being social, and I think many of us are fooled into thinking that the two are equivalent. There will always be suffering, but what if we were so kind to each other and considered ourselves together as a body rather than individual and separated pieces that we all shared the suffering so it ceased being so awful to any one of us?

I think it’s easy to forget that there are solutions to our problems and they are going to be found whenever two or more of us gather together. Remember who told us to do that? Again here it is easy to get hooked into the story, but the story is alive in us. We are telling the story of ourselves right now. I know I’m not alone in preferring kindness to suffering.

Dak Gustal is a freelance writer and poet living in Randoph, VT. You may contact him at st.augustus@gmail.com

Yes. The Holidays™

I’ve heard from many of you in response to my last blog. My heart goes out to all of us who find this time of year less jolly and more complicated. My wish is that we each find our own version of Santa belly laughs. (The coffee shop in which I find myself just had TWO Santas come in. That was confusing. Not so much for the babies, but for me. How can there be two?)

I give you Dak and his creative version of The Holidays…now a brand.

By Dak Gustal

Part 1. In which I set out this year toward Christmas instead of away from it.

For ten months of the year, The Holidays™ are ridiculously easy to survive.

Just outside the Denny’s parking lot in Big Eel, two normal people enjoy a conversation about Christmas from the safety of September:

old coupleEdith; Christmas? What’s the whoop?

Corwin: I know, right? What’s the big whoop?

Edith rattles her free weekly newspaper already blossoming in holiday style

Edith: How would we fall for fake Christmas anyway?

Corwin: I don’t know, right?

Edith: ‘S so stupid!

Corwin: Ridiculous!

Corwin stands, pulls himself to his full height, clenches into a knot then releases a stream of curses across the park at an offending red squirrel. He then resumes sitting in the exact spot the same way, as if nothing happened. Edith does not seem to notice.

Edith: You’re not gonna fall for it this year?

Corwin: I don’t know. No, right?

Edith: I’m just going to enjoy the season for what it is.

Corwin: Yeah! Just enjoy the season for what it is.

Pause.

Edith: It’s about love and peace and joy to the world and stuff. It’s no big whoop!
Corwin: I know, right? What’s the big whoop?

Part 2. In which I begin to realize the flaw contained in Part 1.

It’s December. Krampus, in the form of Our Hero’s Life Partner, explains exactly what the Big Whoop is all about:

Krampus : What’s the big whoop! I’ll tell you what the big whoop is! I got Santa infesting my brain and you don’t have any Santa in you at all and I keep getting things for Billy but Sally just has the one thing even though it’s a big ticket thing and who knows what Kevin thinks about anything, he’s so full of…

[We interrupt this Important Diatribe of Complaints to remind you that when you need to get into The Holidays™ Spirit nothing says “I love you!” like The Holidays™ Spirit of The Holidays™ 64 Calorie Tribute to The Holidays™ Holiday Nog. Get yours today!]

…when she pulled the whole tree down on top of her which is why you always have to put the biggest…are you even listening?

Hero: I wasn’t listening, but now that I know a very good reason to not ask about the whoop anymore, I was wondering if you were going to get to the part where we all come together as one big happy family and the snow falls gently outside but inside everyone is warm and happy to be together and everyone got what they really wanted which was to be seen and heard and enjoyed and cherished and to love their lives and the life you live with the people we love.

Little Girl: But the people we love are often terrible people when they’re around people that love them!

Her Brother: And as it turns out, you’re the worst one!

Uncle in the back: It’s a cultural thing!

Woman in red hat: I blame the ads!

All in Chorus: Yes! Ads are making The Holidays™ conform to their will!

Dad, pounding the table solidly, once: That’s enough! Out All Of You.

Part 3. Total Defeat. Keep Eating?

In the silent aftermath, over the soft grunting and chewing and scraping of silverware on bone china, you can hear music low in the background. Familiar, intricate music designed to hone time to the singular emotion we are all expected to share and overcome; the music always there in the background of The Holidays™, hearkening heraldic angels to sing over and over again. And once more.

The Holidays™ brought to you by It’s Just What I Always Wanted!™ For Men™
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Dak Gustal is a freelance writer and poet living in Randoph, VT. You may contact him at st.augustus@gmail.com

 

Poetry in Caregiving

Over the years Dak (a.k.a. my brother Steve) has given me a most treasured gift: his love through words and friendship. I am grateful that we are a sister and brother duo that has grown up sharing similar interests and friends. We played well together as young kids (even though I broke many of his “toy” sticks just to make him mad), acted in high school plays and marched in band at the same time. While living in Denver, CO, he sang in a church choir that I directed (often times teasing me before we sang by mouthing to me, “What are we singing?”) Today we are uncovering ways we can combine our talents to further the understanding of family caregiving and aging. I am blessed to have such a wise and loving brother on my team. It is my honor to share his thoughts about the month that is now closing and the journey of family caregiving. Read more »

Brain Seeks Research: Cash Available through NFL

Ever forget where you put your car keys? That’s normal. Forgetting what car keys are…not normal. What is the difference between normal aging and memory loss? In my presentation called Forget Less; Remember More, I help you arm yourself with the facts about your brain and reduce your worries. We explore how the human brain works and what it needs to stay healthy. I introduce exercises fun, simple activities you do on a regular basis to help build a stronger brain.

Rather than worrying about cognitive decline as we age, I teach the facts about aging and memory loss, about normal function vs. disease. Alzheimer’s disease is the leading cause of dementia and is the sixth leading cause of death in the U.S. Every 68 seconds an American develops Alzheimer’s disease. That will increase to every 33 seconds by 2050. And yet research lags behind. Why? Because we remain a youth-centric nation and many of the diseases with dementia affect older adults.

Enter brain injuries among professional football players. Read more »

Money, Age, and Big Foot

Recently I posted a question on Facebook asking for top issues when it comes to caring for Mom and Dad. One response was: “I hate trying to make sense of their finances & realizing, by looking through checkbook registers for instance, that dementia was grabbing ahold of my mom much earlier than I realized.”

There are different types of loss. When dementia takes hold or death comes too quickly, financial issues tend to scream for your attention. Right in the middle of dealing with emotions, you need to tackle financial concerns.

I interviewed Aaron Britz of Legacy Wealth Management recently. He specializes in helping women gain financial control during a life transition, such as loss of a loved one. The interview is both upbeat and informational and could be just the ticket for moving you from fear of finances to getting a grip on this often times emotional issue.

And for a completely upbeat and upside-down look at financial issues, I call on Dak Gustal. Be wise…bite off these financial issues and if you want support, contact me. Now, here’s Dak: Read more »

I’ll Eat You Up

It’s “Heart Attack Monday” and I’m often more than amazed how many people are feeling the stress of not only Monday, but of life. At the same time. Dak’s blog is worthy of taking a break to read and reap from his insights.

By Dak Gustal

I know you know this, but maybe you, like me, keep forgetting: stress is hurting us now and in the long term. Here’s a study out of Sweden linking stress in middle age with increased risk of Alzheimer’s disease.

A lot of us are prone to stress. Offhand I would say that most of the people I know are stressed out much of the time. We get into habits of worry and deadlines and getting to the church on time and we have headaches and heartburn and midsections that buzz as if from one blow after another as well as shoulder blades that want to lodge in our earballs. There are so many things that seem so important and so needing of our attention and we want to be good and we want to do right and I don’t want my kids to miss out on anything good or get into anything bad and all you talk about is how your relationship is in trouble again and then there’s the economy and politics and religion. How’re things going at work?

Where is the good news? Or if there is no good news, which prescription can I take?

All I got is the good news today, but you are going to have to want to hear it:

Let it go.

See? I know you read that and something inside of you slumped and was disappointed.

“I already know that.” might be one response, but chances are you think if you let it go you will tumble off into space like Sandra Bullock in “Gravity”, only you don’t have George Clooney in a jetpack to save you, right?

Your mind is designed to think and solve problems. It’s really good at it. It also thinks that it is what’s holding everything together. But every day other people don’t do what we think is right, politicians come to conclusions we simply can’t stand, kids forget to close doors, and if we don’t keep marching around setting things to order, the whole kit and the whole caboodle will cascade into chaos. All of this happens in our minds, but it translates to stress in our bodies. Our physical brains are part of our body.

I know you know you need to get control of your stress, but maybe you don’t know that your mind is probably not the best ally for doing this. Remember, minds think. Let’s get our body’s opinion.

Just sit there for a moment and feel your body from the inside. Let your thoughts get caught up in mapping out your feet, your legs, your torso, your arms, your neck and head. Feel all that electricity bunched up in all the usual places that ache? Imagine that you could let it all go. Imagine that you could forget how important everything is.

What if you forget to think about it a little?

You lose your stress a little.

Take another look at what can happen if you don’t get out of your stress habits.

Come on now, you have a choice.

Dak Gustal is a freelance writer and poet living in Randoph, VT. You may contact him at st.augustus@gmail.com